Apr 15, 2021
If you have been following my blog for a while, you know that I tended Teach's two little ones from the time they were born while she taught 4th grade (and 5th and 6th). Her little guy, Twizzler, from the previous post, was only 6 months old when the pandemic pulled Teach out of the schoolroom and allowed her to teach online classes with her babies at home.
Apr 13, 2021
When Teach was with us last week, she received the call from the genetics team. Her lttle guy was diagnosed with Mowat Wilson Syndrome...
🎈His facial features are very similar to other MWS kids. The ears are just so adorable!
🎈It is considered a rare disease with only about 350+ documented published cases, but researchers believe it is under diagnosed.
🎈He will be closely monitored by neuro-genetics and pediatric development teams at CHOP Children’s Hospital of Philadelphia. It is the second best pediatric hospital in the country.
🎈Twizzler will continue his three hours a week of therapy and potentially that will be bumped up depending on what Development thinks he needs.
He is wonderful. I hope all of you, my friends, will be able to meet him at some point, because he has brought something special with him. ♥️ We sure love our little guy.
Apr 12, 2021
Although Teach and Twiz left town a few days ago to head back to New Jersey, I still want to tell you about our trip to Hogle Zoo.
Last year, before COVID-19 hit, we spent many happy hours using our membership to take the kids and grandkids to see the animals. Now that things are opening back up, we were excited to contine that tradition.
Apr 11, 2021
It seems like my life has been incredibly crazy this last week or so, and one change that became necessary was getting rid of my car. We have had a gray SUV since I wrapped my white Lexus around a tree in December 2019. It has caused me nothing but trouble.
After pouring thousands of dollars into it, my sweetie finally found me a car that we both liked. It's not new, but it is a 2014 Buick.